5/25/09
Home!
Bubsy came home today. He's exhausted. We're exhausted. But he's doing great. A proper update will come tomorrow.
5/24/09
More News from the Bubsy Bedside
Bubsy and Mama V had a rough night, too. He kept wretching, however, he was able to get up to 42 ml/hr of feeds with no morphine. Progress! Also, the surgery physicians just 'realized' that perhaps Bobby's g-tube needs venting to help his reflux. Plus, Miralax was also ordered, so hopefully Bobby will find tummy/GI relief soon.
They are talking discharge tomorrow (Memorial Day Monday), which would be delightful. We know from experience that Bobby heals more quickly at home.
It's Mama A on duty tonight. Hopefully this is the last of the hospital admissions for a (long) while... Amen!
They are talking discharge tomorrow (Memorial Day Monday), which would be delightful. We know from experience that Bobby heals more quickly at home.
It's Mama A on duty tonight. Hopefully this is the last of the hospital admissions for a (long) while... Amen!
5/23/09
News from the Bubsy Bedside
Bubsy and Mama A had a rough night. He kept wretching (more commonly known by college students as dry heaving). I don't think he slept more than 45 minutes at a stretch, meaning Mama A slept not at all.
But that's all last night. Today, he got off of his oxygen and they pulled his nasal tube. Now his cheeks are free. I learned how to hook up the g-tube and its as easy as promised. His wretching is now much better because that big old nasal tube is out of his throat.
He had a bath. He's dressed. He's about to start feeding through the g-tube. He's playing with his toys a bit. We can cuddle and he's allowed to go for walks around the hospital. His face is still a bit swollen but overall he looks much more like himself, except that he doesn't have tape on his face!
So Bubsy is taking a nap. Mamas are going to eat some lunch and then I'm taking a nap to rest up for our big afternoon walk. The doctors say he's doing as well as they could hope - something we don't often hear during hospital stays. Go Bobby Go!
But that's all last night. Today, he got off of his oxygen and they pulled his nasal tube. Now his cheeks are free. I learned how to hook up the g-tube and its as easy as promised. His wretching is now much better because that big old nasal tube is out of his throat.
He had a bath. He's dressed. He's about to start feeding through the g-tube. He's playing with his toys a bit. We can cuddle and he's allowed to go for walks around the hospital. His face is still a bit swollen but overall he looks much more like himself, except that he doesn't have tape on his face!
So Bubsy is taking a nap. Mamas are going to eat some lunch and then I'm taking a nap to rest up for our big afternoon walk. The doctors say he's doing as well as they could hope - something we don't often hear during hospital stays. Go Bobby Go!
5/22/09
One day done
It's been a long but largely successful day for Bobby. This morning we had a bit of excitement as he developed something akin to a rash. His face and shoulders turned bright red, although he didn't have any hives. That went away with cold compresses but then came back this evening, albeit not as bad. The doctors think its a reaction to morphine.
Speaking of which, Bobby has been off of the morphine since 11:00 and it looks promising for us to stay off. He's on Tylenol every 6 hours and that, along with lots of gentle care, seem to do the trick. He hasn't really been all that awake today - he's been pretty out of it, which is just as well.
The father of our little roommate came this afternoon. I'm happy to know that there is a dad. And a very loving dad at that. There was an unfortunate incident involving booger removal and a screaming little guy, but that particular chore is very controversial with Bobby as well.
So we hope for good sleep tonight and I expect a much more alert Bobby in the morning. We'll start his feeds midday. He will begin with 5 ml dripped over an hour. He moves up 5 ml every 4 or so hours. That means he should be on full feeds sometime Sunday.
Speaking of which, Bobby has been off of the morphine since 11:00 and it looks promising for us to stay off. He's on Tylenol every 6 hours and that, along with lots of gentle care, seem to do the trick. He hasn't really been all that awake today - he's been pretty out of it, which is just as well.
The father of our little roommate came this afternoon. I'm happy to know that there is a dad. And a very loving dad at that. There was an unfortunate incident involving booger removal and a screaming little guy, but that particular chore is very controversial with Bobby as well.
So we hope for good sleep tonight and I expect a much more alert Bobby in the morning. We'll start his feeds midday. He will begin with 5 ml dripped over an hour. He moves up 5 ml every 4 or so hours. That means he should be on full feeds sometime Sunday.
Quiet Friday (Hopefully)
Bobby had a rough time last night. He was on morphine from about 6:30 on, but his doses came every 3 hours and the effect only lasted 2. Although, genius mom that I am, at 2 this morning I finally decided to hold him, cords and leads be darned, and that calmed him immediately. I should know better than to let all the attachments scare me off of holding him.
So now he's sleeping comfortably. We're going to try to keep him on Tylenol instead of morphine today. I'm hoping today will be about sleeping and cuddling. We're just waiting for his tube to heal a bit - we will start feeding him tomorrow.
We've been very lucky staff wise during this stay. Pretty much everyone we've come in contact with has been very nice and very good at what they do. Being on 5W is like a reunion for us - staff keep stopping by to say hello.
We have a very nice roommate. He's a little guy, maybe a year or so older than Bobby. He either doesn't have parents or he doesn't have parents who can be here so the nurses take care of him. He spends his awake time at the nurse's station being doted on. Right now, he's gone to his play group.
So now he's sleeping comfortably. We're going to try to keep him on Tylenol instead of morphine today. I'm hoping today will be about sleeping and cuddling. We're just waiting for his tube to heal a bit - we will start feeding him tomorrow.
We've been very lucky staff wise during this stay. Pretty much everyone we've come in contact with has been very nice and very good at what they do. Being on 5W is like a reunion for us - staff keep stopping by to say hello.
We have a very nice roommate. He's a little guy, maybe a year or so older than Bobby. He either doesn't have parents or he doesn't have parents who can be here so the nurses take care of him. He spends his awake time at the nurse's station being doted on. Right now, he's gone to his play group.
5/21/09
Morphine Haze (7:53pm)
Bobby did great today. His extubation went well so we are now on a regular floor, not in the PICU. He had a rough time transitioning from the recovery room to his permanent bed. His stomach is sore so he wretched which made his stomach more sore. He turned a really bright red. It was a little scary. But, one dose of morphine set him right. He's now sound asleep and the goal is to keep him comfortable through the night.
Tomorrow will be a day of rest while the g-tube heals. Hopefully his pain will be better in the a.m. At the least his doctor seems to be of the mind to dope him up, which is good provided we don't end up on methadone like last time.
Tomorrow will be a day of rest while the g-tube heals. Hopefully his pain will be better in the a.m. At the least his doctor seems to be of the mind to dope him up, which is good provided we don't end up on methadone like last time.
More good news (5:15pm)
We just spoke with the audiologist and ophthalmologist. Bobby's hearing and his eyesight are fine. He has congenital nystagmus in his eyes which long term will require glasses, but for now his vision is good.
We're just waiting to hear about the extubation.
We're just waiting to hear about the extubation.
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