12/21/08
12/20/08
Back to the Blog
Well, it's been awhile since we posted. Bobby is keeping us running these days - no more long naps :) But we're back and we promise to stay more up to date.
Since we last wrote we did resolve our daycare situation. We finally gave up on trying to make day care work and we hired a new nanny to watch Bubs until after his next surgery. Its turned out to be a wonderful decision. Nanny Beth is amazing. They adore one another and Bobby has made great progress in his therapy since she started working with him. He is exponentially stronger. He can roll over tummy to back. He's started working on some pre-crawiling moves. He's full of curiousity and wonder about the world around him. Valerie and I secretly believe that Beth is probably a better care giver than we are. But then we figure we're pretty good parents for having brought Beth to Bobby in the first place.
Not, of course, that life with Bubby doesn't involve some challenges. After weeks of no weight gain he was diagnosed with H. Pylori, a bacterial infection usually found in unsanitary environments and rarely found in babies. But that's Bobby for you. A round of antibiotics cleared up the gastritis caused by the infection and he's since gone back to his full figured ways.
He had a cardiac catheterization the day after Thanksgiving. This is a diagnostic test where they took the last set of measurements for his heart surgery. They have decided that the standard 2 ventricle repair is not an option for him. Instead they are going to put in a Glen shunt which will reroute the blood supply from his body sending it directly to the lungs. We're in the process of getting a second opinion, but all signs point to this being the eventual outcome. His surgery is scheduled for January 13th.
In the meantime, Bobby was well enough in October that we were able to visit my family in Kansas City for the first time. Bobby got to meet his Uncle Bob, one of the men he's named for. Big Bob was in the hospital, having just finished some very strong chemotherapy. He loved seeing Bobby. Bobby, for his part, was very excited to meet another member of the Robert lineage. He laid on my brother's stomach for a long time, chatting loudly. It was a wonderful visit.
With surgery looming, we are putting all our focus into enjoying Bobby's first Christmas. What started out as 'we'll just get him a couple of presents' has turned into a marathon of gift giving where he gets presents every day between now and Christmas day. At one point, Valerie questioned whether we were overdoing it, but then I reminded her "But he's having surgery in a month". I just want that recorded for posterity so Bobby will know which mama has had his back from the beginning.
Since we last wrote we did resolve our daycare situation. We finally gave up on trying to make day care work and we hired a new nanny to watch Bubs until after his next surgery. Its turned out to be a wonderful decision. Nanny Beth is amazing. They adore one another and Bobby has made great progress in his therapy since she started working with him. He is exponentially stronger. He can roll over tummy to back. He's started working on some pre-crawiling moves. He's full of curiousity and wonder about the world around him. Valerie and I secretly believe that Beth is probably a better care giver than we are. But then we figure we're pretty good parents for having brought Beth to Bobby in the first place.
Not, of course, that life with Bubby doesn't involve some challenges. After weeks of no weight gain he was diagnosed with H. Pylori, a bacterial infection usually found in unsanitary environments and rarely found in babies. But that's Bobby for you. A round of antibiotics cleared up the gastritis caused by the infection and he's since gone back to his full figured ways.
He had a cardiac catheterization the day after Thanksgiving. This is a diagnostic test where they took the last set of measurements for his heart surgery. They have decided that the standard 2 ventricle repair is not an option for him. Instead they are going to put in a Glen shunt which will reroute the blood supply from his body sending it directly to the lungs. We're in the process of getting a second opinion, but all signs point to this being the eventual outcome. His surgery is scheduled for January 13th.
In the meantime, Bobby was well enough in October that we were able to visit my family in Kansas City for the first time. Bobby got to meet his Uncle Bob, one of the men he's named for. Big Bob was in the hospital, having just finished some very strong chemotherapy. He loved seeing Bobby. Bobby, for his part, was very excited to meet another member of the Robert lineage. He laid on my brother's stomach for a long time, chatting loudly. It was a wonderful visit.
With surgery looming, we are putting all our focus into enjoying Bobby's first Christmas. What started out as 'we'll just get him a couple of presents' has turned into a marathon of gift giving where he gets presents every day between now and Christmas day. At one point, Valerie questioned whether we were overdoing it, but then I reminded her "But he's having surgery in a month". I just want that recorded for posterity so Bobby will know which mama has had his back from the beginning.
12/13/08
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