Feeding Frenzy

This week in Bubsy land has found us focusing on his feeding schedule. We went to the ER Monday night because his wretching had gotten so bad that it was impacting his breathing. X rays confirmed that his g-tube and nissen were still in place. They admitted us with promises of an upper GI on Tuesday morning. But, when Tuesday came around they did not do anything further to help him. Instead they offered to keep him and 'watch' his feed for 36 hours. Now, 'watch' on one of the main floors of the hospital is a tricky concept. The nurses have a full load of patients in different rooms and are required to check on Bubs once every four hours. The residents who we might page are of course quite busy and take a long time to come when paged. So, 'watch' means that Mamas A and V sit on their butts for 36 hours and watch Bubsy and listen to the cries of the child in the next bed and wait for Bobby to run a temperature because of the infection he always gets in the hospital. So if he did wretch the doctors would have to take our word for it. Which is exactly what we wished they would do based on us having 'watched' him wretch for the past several weeks. (I don't know what sound a tree makes in an empty forest, but apparently a wretch is not heard unless its viewed by at least a resident). It took me about 7 hours of arguing but Bobby was eventually discharged for us to 'watch' from our own house. They suggested we change his feed and sent a nutritionist to give us a recommendation. The nutritionist asked me what I thought would be a good approach and wrote that down on her sheet.

So we got nowhere except that Bubs did get an IV and a break from eating for about 12hours. And we've started him on a gentler schedule. So far it looks promising although it will take another week or so for us to get back to any kind of maintainable schedule. In the meantime, Bobby had a cold - predating the hospital, we think, so its been a quiet week with lots of snuggling.

He is learning to push himself on a four wheeled scooter. He has started saying 'kay kay kay kay'. And has been the case for several months now, he just feels a ton stronger. This weekend we are starting our "Merry Music Maker" class and are hopefully going to a folk festival where they have an instrument petting zoo. He continues to refuse to roll over and we are beginning to think the boy may walk before he regularly rolls over tummy to back. That must be mohawk thinking.