Bobby's Getting Better

Good news this morning from Children's Memorial - Bobby's lungs look much better so his bronchoscopy is canceled. Instead, we're going to start the process of weaning him off of the oxygen. If that starts off well, he'll get to eat for the first time since Monday night.

Right now, he's laying in his bed, kicking his feet, waving his arms in spite of the IVs, in spite of the soft encasings wrapped around his arms in an attempt to protect the IVs from coming loose. Bobby's playing with his tongue by sticking it half way out of his mouth and waving it around, all the while trying to focus his eyes on the oxygen equipment that arcs from the top of his forehead down into his nostrils. He's started talking again. A lot of what he's communicating doesn't sound very happy, but I'm happy to listen to whatever he has to say. And I'm even happier to see that Bubs is feeling better.

I had a good meeting with the cardiologist yesterday and understand the plan better. We'll still be under close monitoring by doctors, but our timeline for surgery is significantly extended. In 3 months, they will do a cardiac catheritization to see how Bobby's doing and we'll make plans from there. Surgery might happen then or it could be a ways beyond that. As for the kind of surgery? We're just not going to know for a while.

After he's recovered from his big week, we should have a Bobby that feels much better. That and the extended repair timeline means that we need to revise our approach to this living with a heart defect. Instead of our life revolving around Bobby's heart, we need to start branching out, working on his development, playing with him more, leaving the house more, living more of a baby life. We had hoped to do this without the specter of more surgery hanging over us and this will certainly be a little harder for Bobby's fretful mamas, but with Bubsy, we're learning to make adjustments.