New Surgery Date

Our new surgery date is Friday, February 20th. Our goal is to stick with that date, GI issues are no, simply because we don't want Bobby to develop more severe complications from his heart problems. His oxygen saturation levels are falling a bit (that's the % of the blood flowing through the body that is oxygenated. In a healthy person the levels are near 100%. Over his young lifetime, Bobby's levels have gone from low nineties to high eighties to mid eighties to low eighties...you get the picture.

And it looks like we might still have GI issues. After the optimism of last week we're back to vomit vomit and more vomit. We're feeling a bit demoralized. Its scary having this issue that gets worse and worse over time, with every apparent 'solution' falling by the wayside and, quite frankly, its hard to keep our chin up when we're being drenched with vomit every few hours.

For now, his doctor has suggested that we give him a lighter food load for the next 24 hours in the hopes that this is just a temporary set back.

For his part, Bobby enjoyed his introduction to football during last night's Super Bowl and is wonderfully sweet. He's regaining some of his strength and will have his next set of Early Intervention assessments this week. Incredibly, he seems as happy now as he's been in his life - his smiles and laughter are coming easier and easier. He's become very ticklish under his chin and on his belly. He's learning to give kisses, sloppy affairs that cover our whole cheek or chin. And he's blissfully unaware that his mamas are freaking out.