Mamas Nerviosas

Bobby's getting closer and closer to coming home. He finally got some sleep last night and woke up in a happy (stoned) mood. He's on quite a bit of methadone at this point in time and we may go home with a small dose. He's slowly being weaned off of Precedex, his other sedative. But, overall, his system is much cleaner.

He's in his own sleeper this evening, being rocked in his stroller by Mama V. Today was the first day in a while that he really enjoyed being held and he got cuddled by mamas and nanny all. He had music therapy with a therapist who sang and played the guitar for him. Our music lover slowly scooted his way across his crib in an attempt to get his hands on the guitar. He loved it. He also had his first PT session since surgery where we learned some simple exercises to start rebuilding his strength. He did not love that, but he was a good sport.

They are finalizing his medicine regimen for home - I think we'll go home on Lasix to eliminate fluid retention, Viagra to help with pulmonary hypertension, Capopril for high blood pressure, and Prevacid and Zantac for GERD. Not that bad given what he's been through.

The nj tube is working out quite well. He's on full feeds without any reflux. Its going to be hard having to keep him hooked to the pump for 18 hours a day, but its only for a couple of weeks while his larynx heals from the intubation. Its nice to not have to deal with vomiting every feed. Very nice.

Its a lot to balance. So much that I had a little episode today where I got concerned that we'd been botching one of his treatments. He's supposed to wear an eyepatch for a couple of hours each day to correct the vision in his crossed eye (Mama V calls it pirate therapy) When he woke up this morning (stoned) both eyes were crossed, but the one that looked really bad was the supposed 'good eye'. I had a sinking feeling that we'd been doing pirate therapy on the wrong eye. Valerie sent a sheepish email to his opthamologist, who assured us we were on track. Just a case of too much to remember, I think. And Mamas being paranoid. We'll feel so much better when we get Bobby fitted for his bubble.